While there are endless concerns for parents of children with special needs, one of the greatest worries is who will care for them in the future.
With proposed Connecticut State budget cuts to the Department of Developmental Services (DDS) totaling millions of dollars, parents need to plan now to ensure quality care throughout the child’s lifetime.
“Generally, the parent of a child with special needs has two goals; to provide or source enough financial security to maintain the child’s quality of life now and after the parent is no longer here, and to develop a care plan that will secure the services, supports and care partners needed to support the child’s medical, therapeutic and developmental needs.” said Attorney Claudia Englisby, Head of the Disability Planning Department at CzepigaDalyPope.
Attorney Englisby notes that In order to make those goals a reality, there are 5 steps parents or guardians need to take.
First prepare a will, a Will is the most basic building block of an estate plan. The purpose of a Will is to designate how your estate should be distributed upon your death. Without a Will, the state makes all the decisions.
Secondly, designate a Power of Attorney, a power of attorney is a person or persons you grant the right to act on your behalf if you are incapacitated. Choose wisely. Your power of attorney has the same authority as you over your finances.
What happens when your child turns 18 and is no longer a minor?
If the young adult has the capacity to understand, have him or her grant you durable power of attorney and appoint you as the health care agent to allow you to continue to act on his or her behalf if necessary.
Parents should also name a Guardian for a minor child, and name a Plenary Guardian for a child with an intellectual disability
If a minor child’s parents or legal guardians pass away when the child is a minor, another person will need to become guardian of the minor child.
This should be done well in advance, and can be a designation in the parents’ Will. If a guardian is not appointed, a court may need to appoint someone.
If your child has an IQ lower than 69, or over 69 with adaptive needs, you may want to consider having a court appoint you as a Plenary Guardian.
A stand-by plenary guardian should also be appointed at the same time, so there is always someone available to care for the child. If you don’t appoint someone, the court will decide.
Another step is to create a special needs trust. A special needs trust will help to ensure that your child will have sufficient resources to live and to thrive.
There are several types of special needs trusts. The good news is you don’t have to be rich to set one up and you don’t have to fund it now.
Finally appoint a Trustee. Your child cannot, even if capable, manage the trust funds.
Furthermore, the funds used in the trust must be used properly to ensure eligibility for public benefits, services and supports are not jeopardized. The trustee you appoint is authorized to pay for a wide range of items, depending on the government benefit programs your child is receiving.
“Having the right plan in place is critical, particularly in our current political environment,” adds Englisby.
Developmental Disabilities Awareness Month in March calls on Americans to provide the encouragement and opportunities necessary for people with developmental disabilities to reach their potential. However, taxpayer-funded programs for people with disabilities nationwide are more at risk in today’s economic climate.
Medicaid, which has funded many employment and community-based residential programs, is also under fire.
The special needs planning attorneys at CzepigaDalyPope not only advocate for people with disabilities, they address the full spectrum of services needed to live secure, fulfilling lives.
They sort through all of the confusing options and create a plan that fits a family’s needs and resources, from utilizing special needs trusts, and asset protection strategies to preserve eligibility for the child for Medicaid and other needs-based programs.
“Our goal is to reduce the financial and emotional strain on families and eliminate parent’s frustration and uncertainty of not knowing what will happen to their child with special needs,” concludes Englisby.
Since 1998 CzepigaDalyPope has specialized in disability planning and probate litigation. Offices are located across Connecticut in Hartford, Berlin, Simsbury, South Windsor and New Milford.
For more information call (860) 236-7673
Young Girl Donates Birthday Gifts to Bristol Hospital
Bristol Police Honor Fallen Officers With Memorial Ceremony
Visions For Vacancies: Federal Hill Office Space
Alan Boardman: Bristol Closed Until Further Notice
Bristol Historical Society to Host Another Hollywood Movie Magic Night
Wheeler Receives Ambulatory Health Care Accreditation, Primary Care Medical Home Certification
Busted: Bristol Police Arrests For 5/23/17
Hey Bristol, Remove Your Name From This Website Now!
Work ‘N Gear to Open Store in Bristol
Memorial Day Service Schedule
Connecticut BBB Urges Consumers to Avoid Doing Business at the Front Door
Bristol resident offers open invitation to local refugee families for gardening project
Busted: Bristol Police Arrests Over The Weekend
Gigs in Bristol: 5/21/17
Mom of Four Wins Magnificent Mother’s Day Makeover
Lake Compounce to Host Craft Beer & Food Truck Festival
Bristol Garden Club to Host Native Plant Sale at Barnes Nature Center
Bristol Historical Society Names Ellen Zoppo-Sassu Volunteer of the Year
Busted: Bristol Police Arrests For 5/18/17
Busted: Bristol Police Arrests For 5/17/17
ABOUT BRISTOL ROUNDUP
Bristol Roundup is a popular source for Bristol Connecticut news, events and information. The Roundup, started by Bristol resident Mike Uchalid currently has over 5,000 subscriptions and a local social media following of over 25,000 readers across multiple sites, pages and groups. The Roundup provides accurate information, events, news and so much more. We hope you enjoy the site!
MORE NEWS FROM WORDPRESS PARTNER: FOX 61
MANCHESTER, ENGLAND— A British official says police in Manchester will stop sharing information about their bombing investigation with the U.S. until they get a guarantee that there will be no more leaks to the news media. The official, who spoke on condition of anonymity because he was not authorized to speak publicly, said there is progress being made on the investigation despite the leaks. British Prime Minister Theresa May is expected to raise the issue of the leaks with President […]
BRIDGEPORT — The Bridgeport Police Department is investigating a deadly late night shooting in Bridgeport. Bridgeport police said the homicide happened at around 9:30 p.m. in the area of Iranistan and Railroad avenues in Bridgeport, near a ballfield at Went Field Park. A man was found shot to death there. Police said a passer-by found the man suffering from a gunshot wound to the head. The victim’s name has not been released and there has been no word on arrests at this time. […]
HARTFORD — State legislators will convene at the state Capitol Thursday to discuss how budget cuts and layoffs to state workers will negatively impact the future of Connecticut’s state parks. Most recently, 12 full-time state park maintainers were laid off, which leaves 35 maintainers to take care of the 110 state parks, 15 campgrounds, and a few other facilities. Another cut that would impact the parks includes the proposal to take $8 million from The Department of Energy and Environmental Protection. […]
An unsettled weather pattern is not over yet, so keep that umbrella nearby. You may also reach for a light jacket in the coming days. Clouds will increase tonight with showers developing Thursday morning. Thursday will be cloudy, cool and wet with showers becoming more numerous throughout the day. High temperatures will struggle in the 50s to near 60 degrees. Most of Friday will be dry but there is a chance for a few leftover showers, especially in the morning. […]